Donate Directly to Carlin’s Cancer Expense Fund


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This kid:

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I have no words!

Okay, maybe I have a few words:

Carlin is a precious three-year-old chock full of three-year-old sparkle; she loves to play outside, ride her horses, chase chickens, and dress her dogs in costumes (and you know they love it right back!). A country kid, through and through! She adores preschool, and being with her big sister.


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photo copyShe is something of a tutu connoisseur, and rocks those things like no one I know. And man, does that kid have a smile that goes for days.

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In November of 2013, with no warning at all, she suffered a seizure that sent her to the ER, where the doctors discovered what they thought to be a low-grade brain tumor. Surgery proved otherwise.

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Carlin was diagnosed with an extremely rare and very aggressive type of brain tumor called ETANTR (Embryonal tumor with abundant neuropil and true rosettes). She is currently undergoing an intensive chemotherapy protocol, which will be followed up with radiation.

And yet, still rocking those tutus with a big ol’ smile!

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tutuTOUGH.com ETANTR Awareness

Carlin getting a special visit from our good friends Tina & Roo of Read to Roo.

tutuTOUGH.com ETANTR Awareness

Carlin, her big sis, Harper, and Roo (sporting a tutu of his own).

When Carlin was first diagnosed, there was so very little information out there on this diagnosis (there is somewhere around only 300 reported cases) that her parents were at a loss. It is their hope to bring more awareness to the ETANTR tumor, and to its research. Here is a more detailed article for anyone wishing to have a little more information on ETANTR.

For more about Carlin’s story, please visit tutuTOUGH.com and follow along on Twitter. You can help support Carlin’s treatment by donating directly or by stocking up on Team Carlin Gear.

Additionally, you can cheer Carlin on by using the hashtag #tutuTOUGH on your tweets, Instagram photos, and Facebook posts. We want to see you sporting your Team Carlin gear, so be sure to take a photo and tag it with #tutuTOUGH! Here’s some examples:

tutuTOUGH.com ETANTR Awareness

My Nephew rocking his Team Carlin shirt. He thinks Carlin is not just #tututough, but also superhero-tough! (His words!)


tutuTOUGH.com ETANTR Awareness

Abbie, Phoebe, and Milo show off their muscles (and muffin-tops) in their #tutuTOUGH doggy t-shirts.

tutuTOUGH.com ETANTR Awareness

Go Team Carlin! Photo courtesy of Michelle Agnew.


Team Carlin in Ohio! Photo courtesy of Tina Anderson.

tutuTOUGH.com ETANTR Awareness

Two #tutuTOUGH pixies representing after their theater production of Peter Pan. Photo courtesy of Amy Loy.

tutuTOUGH.com ETANTR Awareness

#tutuTOUGH, Dallas-style! Photo courtesy of Jennifer Smallwood.

tutuTOUGH.com ETANTR Awareness

Tutus for #tutuTOUGH–thanks, Roo and E! Photo courtesy of Tina Anderson.

tutuTOUGH.com ETANTR Awareness

And, of course, the most #tutuTOUGH of them all: Miss Carlin!

Fight’s on, Brain Cancer!




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8 thoughts on “#tutuTOUGH

  1. Kathleen Bartholomew Loy June 11, 2014 at 4:44 pm Reply

    Love the update on Carlin.. Anyway to add the FundRazr info, so each of us that repost can help get them contributions? Must appreciated. . .Carlin’s auntie.

    • farmhouseK8 June 11, 2014 at 5:08 pm Reply

      Thanks, Kathleen! The fundrazr link is down there when you click on ‘donate directly’. 🙂

  2. Denise Ponder June 11, 2014 at 6:44 pm Reply

    Great article on this wonderful little girl!!! Thank you!

  3. Maureen June 12, 2014 at 7:50 am Reply

    She’s a trooper in a tutu!

  4. home, garden, life June 12, 2014 at 12:41 pm Reply

    I posted this on my Pinterest page. Good thoughts to Carlin. Thanks Kate for this wonderful post…Diane

    • farmhouseK8 June 12, 2014 at 3:10 pm Reply

      Thank you for sharing, Diane! 🙂

      • home, garden, life June 12, 2014 at 4:58 pm

        Kate, do you know Carlin personally? If so please tell her we are all pulling for her. xo

  5. Dianne McGregor Allen June 15, 2014 at 11:21 pm Reply

    Thank you so much for sharing the story of this beautiful, courageous little girl! I will keep her in my thoughts and prayers for sure.


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